Alien visitor: how an 18 yearold boy with rare disease looks and lives

Alien visitor: how an 18 yearold boy with rare disease looks and lives

Alexey often faces misunderstanding in society

Alexey is the second person in Russia and the 16th person in the whole world who suffers from a very rare and unexplored disease — ablepharmacrushomy syndrome.

Due to his illness, the boy ended up in an orphanage at an early age. The biological mother could not find the strength to raise a child with special needs, writes StarHit.

The boy grew up and when he was 11 years old, Nadezhda Yarikhmetova saw his story on the Internet. A woman who at that time was raising four children of her own and five adopted children became interested in the fate of Alexei and decided to meet him.

When she arrived at the orphanage and talked with the boy, Nadezhda was offered to adopt him. The mother of many children discussed this with her husband and they took the child home.

Despite his peculiarity, the child turned out to be very kind and cheerful. Alexey quickly entered the family, got comfortable and began to live a full life, surrounded by love and care.

Lekha moved to live with us 10 months later, before that we took him on the terms of the guest regime. To understand what he is, we decided to go to the sea together.

They had a fight there for the first time, and I realized that he was hearing, thinking, perceiving praise. He is a completely normal child, ”Nadezhda said in the program“ Beyond the Boundary ”.

Ablepharmacrushomic syndrome, which only 16 people on the planet have, appeared in Alexei at the stage of the embryo. It is associated with the pathology of skin formation, which is why the appearance of the boy is very different from the usual for everyone.

The syndrome greatly affects hearing, the nervous system and vision, but not life expectancy.

Of course, because of the peculiarity, Alexei has a hard time in society. He is often stared at on the street, asked uncomfortable questions — is he an alien — and even not allowed into some public places.

For example, Nadezhda and her son were not allowed into the water park and refused to play the drums.

In other cases, Alexei lives a normal life. Already an 18-year-old young man loves to cook, helps with the housework and even records videos on TikTok, in which he performs incendiary dances to modern music.